Savanna was diagnosed at 12 weeks of age with Infantile Spasms, progressing to intractable epilepsy soon thereafter.

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The Grace of God shined as Savanna's first doctor was a leading pediatric epileptologist.  And, she gave Rebecca and I intense clarity about the magnitude of Savanna's situation very early (like day 3) that helped us better navigate the world of childhood epilepsy.

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That first diagnosis took everything we hoped for our daughter away suddenly.  There is a timeless essay called "Welcome to Holland" that poignantly describes how life became for our family.

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Savanna's first doctor recommended surgery, a radical thought indeed.  But, that became our prayer.

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Savanna underwent surgery (full left POT/TPO) and today lives seizure free.   Today she thrives.  Today, she can bless our food at dinner time.

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The Seize Hope Fund supports research that brings surgical intervention for seizure control to more children like Savanna. No monies donated goes to our family.  Every donation matters.

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Another little essay written about our journey in a local publication is here.